WHAT IS AUTISM?

Nick Walker, PhD

 

I wrote this piece back in 2014, because I’d seen so many attempts by others to briefly define autism––in presentations, websites, brochures, academic papers, etc.––and they’d all been dreadful.

I decided the world needed some good basic introductory “What Is Autism” text that was:
1.) consistent with current evidence;
2.) not based in the pathology paradigm;
3.) concise, simple, and accessible; 
4.) formal enough for professional and academic use.

So I did my best to write such a thing, and here it is. It’s been widely quoted, reprinted, and translated in the years since I wrote it. As long as you credit me for writing it, feel free to quote or reprint this piece whenever you need a piece of basic “What Is Autism” text.

Autism is a genetically-based human neurological variant. The complex set of interrelated characteristics that distinguish autistic neurology from non-autistic neurology is not yet fully understood, but current evidence indicates that the central distinction is that autistic brains are characterized by particularly high levels of synaptic connectivity and responsiveness. This tends to make the autistic individual’s subjective experience more intense and chaotic than that of non-autistic individuals: on both the sensorimotor and cognitive levels, the autistic mind tends to register more information, and the impact of each bit of information tends to be both stronger and less predictable.

Autism is a developmental phenomenon, meaning that it begins in utero and has a pervasive influence on development, on multiple levels, throughout the lifespan. Autism produces distinctive, atypical ways of thinking, moving, interaction, and sensory and cognitive processing. One analogy that has often been made is that autistic individuals have a different neurological “operating system” than non-autistic individuals.

According to current estimates, somewhere between one percent and two percent of the world’s population is autistic. While the number of individuals diagnosed as autistic has increased continually over the past few decades, evidence suggests that this increase in diagnosis is the result of increased public and professional awareness, rather than an actual increase in the prevalence of autism.

Despite underlying neurological commonalities, autistic individuals are vastly different from one another. Some autistic individuals exhibit exceptional cognitive talents. However, in the context of a society designed around the sensory, cognitive, developmental, and social needs of non-autistic individuals, autistic individuals are almost always disabled to some degree – sometimes quite obviously, and sometimes more subtly.

The realm of social interaction is one context in which autistic individuals tend to consistently be disabled. An autistic child’s sensory experience of the world is more intense and chaotic than that of a non-autistic child, and the ongoing task of navigating and integrating that experience thus occupies more of the autistic child’s attention and energy. This means the autistic child has less attention and energy available to focus on the subtleties of social interaction. Difficulty meeting the social expectations of non-autistics often results in social rejection, which further compounds social difficulties and impedes social development. For this reason, autism has been frequently misconstrued as being essentially a set of “social and communication deficits,” by those who are unaware that the social challenges faced by autistic individuals are just by-products of the intense and chaotic nature of autistic sensory and cognitive experience.

Autism is still widely regarded as a “disorder,” but this view has been challenged in recent years by proponents of the neurodiversity model, which holds that autism and other neurocognitive variants are simply part of the natural spectrum of human biodiversity, like variations in ethnicity or sexual orientation (which have also been pathologized in the past). Ultimately, to describe autism as a disorder represents a value judgment rather than a scientific fact.

A Spanish translation of this piece is available at
http://www.comunidadesinclusivas.org/que-es-el-autismo.html

A Portuguese translation of this piece is available at
http://autismoemtraducao.wordpress.com/2015/09/17/autismo-sugundo-o-paradigma-da-neurodiversidade/ 

A Russian translation of this piece is available at 
http://neurodiversityinrussia.com/2015/07/08/ник-волкер-что-такое-аутизм/

A German translation of this piece is available at
https://white-unicorn.org/?mod=neurodiversitaet

A Swedish translation of this piece is available at
http://pemer.net/blogg/2016/08/18/vad-ar-autism/

A Czech translation of this piece is available at
http://www.mujautismus.cz/2016/05/co-je-autismus.html

A Slovene translation of this piece is available at
http://nevroraznolikost.blogspot.si/2016/04/kaj-je-avtizem.html

An Estonian translation of this piece is available at
https://aspiyhing.wordpress.com/mis-on-autism-nick-walker/